July 9

We are all settled in to our hospital room tonight and Izzy is sound asleep.  The central line placement went fine today.  There are now 2 cords running down from her breast bone to just below her pelvis.  They can draw labs at the same time she is receiving IV meds if they need to.  This line will stay in the duration of her treatment and will require daily care to prevent infection.  No swimming or baths for the next 15 months. 

We also got back the bone marrow results from last weeks.  The findings did show some indication of neuroblastoma in the marrow but it was a minuscule percent.  Again just more info to further confirm a Stage 4.  

They were unable to start chemo today because ome other delays.  Infactd there are so many children here receiving hem/onc treatment right now that we are on an overflow floor with 14 additional oncology patients. Starting tomorrow means additional delays because she has to receive an injection 24 to 48 hours following chemo to boost her white blood cell production.  This means we’ll probably be here til Monday.  

Most of this day was horribly overwhelming.  But there was a small piece of encouragement. The doctors seem to think Izzy is unique in that as advanced as her disease is, she isn’t sick. I’ll take that as the Lord’s hand upon her!  And I’ll boldly ask for more of it.  

 

18 thoughts on “July 9

  1. Yes, in response to your July 9th…yes, what a huge huge blessing that she isn’t sick. I’ve been thinking that all along! We will boldly ask with you!! Love you!

  2. Come on, girl… “She isn’t sick.” That’s it. That is not Izzy’s identity. Let’s start with… princess, overcomer, … you get the idea. I wonder whose lives you will transform during this process. I wonder how the Father is going to redeem this. I’m so convinced that our Father is good. We joke in my house about being the bionic woman (the central line/port and all). Maybe Izzy will be a superhero, too! There’s always a reframe and lots of reasons to laugh. Nobody can take laughter and love away from you. Blessings, peace & rest on you all.

    • From the bottom of my heart, thank you. Your comments are so uplifting and exactly what we need to hear. After feeling devastated by this news, it’s time to pick up the pieces and view this in a different way. I’m glad you’re on the other side of it and pulling us up with you! thanks

  3. Yes, thank You, sweet Jesus, that Izzy is Your precious beloved and Your hand is upon her. I bless her in Your wonderful name with favor from on high. May grace and mercy and supernatural joy and strength be her portion forevermore!

  4. Randy and Mickey McNeil just gave us a paper about Izzy. We are standing with you for the miracles God has for her. You are now a focus of prayer for our church too. My prayer today… Those who trust in the Lord will find new strength!! They will soar high on wings like eagles. They will run and not grow weary. They will walk and not faint. Lord, lift them up in Your Strength!

  5. Praising God with you for this bit of good news. I saw Meg B.’s facebook post and came over here to see how I can pray for your family. Praying, praying, praying.

  6. She is a beautiful, wonderful, child of God. The Almighty does indeed hold her high. We will boldly ask for more!

  7. Praying that each day brings Izzy times when she feels well enough to play and smile. Some days are bound to be difficult for all of you. Praying for God’s peace.

  8. Little Izzy is God’s gift to all of her family and friends and he will take care of all.
    My church has Izzy on our prayer list and we will ALL ask for more.

  9. Hi Miss Molly. The Holy Spirit lays you guys on my heart to pray for you all unceasingly (if that’s a word). Becky Pico (Roudebush) has your name on her fridge and when she walks by it (which is a ton during the day) she prays for you all as well. I love you girl. xxoo

  10. your story has touched my heart.. we are currently going through our own trial with cancer.. and have to constantly remind myself.. we trust an unknown future to a known God.. it’s scary at times.. and my faith and fear are in constant battle..
    this verse in psalm 103 has brought me comfort.. reminding me of the character of our God.. he heals all our diseases..crowns us with love and compassion…

    Praise the Lord, my soul;
    all my inmost being, praise his holy name.
    Praise the Lord, my soul,
    and forget not all his benefits—
    who forgives all your sins
    and heals all your diseases,
    who redeems your life from the pit
    and crowns you with love and compassion,
    who satisfies your desires with good things
    so that your youth is renewed like the eagle’s

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