The feeding tube insertion went as well as expected yesterday. It’s taken her 24 hours to get used to it being down her throat but she’s handling it fine now. I thought it would take days, so I’m thrilled. The problem is that the sensation of having a tube down her throat has been causing her to gag which is obviously never good for someone who’s already been throwing up.
By the time we got here this morning she was too weak to do anything but sleep. It’s now nearly 5pm and because she was so dehydrated the protein levels in her urine never made it low enough to start chemo today. They’ve decided to admit us to keep her hydrated overnight. They also put her on some new anti-nausea meds which seem to be working. In general she feels better this evening than she did this morning and of course that makes me feel better too.
I hate it that we’re so far away from home. I hate being away from my family, my community and my support system. But I love this hospital. Izzy’s team here is amazing. She has doctors and care managers working together on every detail of treatment. And they’re personable. I’ve never been to a hospital where the doctors were on a first name basis with their patients. But that’s how they do it here. Every person this week has come in asking to see a picture of her in the wedding. The doctors don’t just come in to do rounds. They stop in three to four times a day to answer questions and see her in the flesh. I can honestly say it feels like the doctors care and are taking ownership for her. Who doesn’t want that during something like this?
The rest of the week remains to be seen. Our tube feedings have been delayed because of how sick she’s gotten. If tomorrow goes better we can go back to the hotel after chemo. Otherwise we’ll stay here until we’re done on Saturday.
I can not stress enough how thankful I am for the love and support we have received. Every single day something encouraging finds it’s way to me from one of you. Something you’ve written, something you’ve mailed, something you’ve prayed. Everything that you’ve done has had impact. Your love has taken chunks out of the pain that we feel. So at the end of days like these I can only think of saying, thank you. For your part in loving us, in supporting us and in standing in the gap for us in prayer. You may not feel like it’s much, but it has impact.