The feeding tube insertion went as well as expected yesterday. It’s taken her 24 hours to get used to it being down her throat but she’s handling it fine now. I thought it would take days, so I’m thrilled. The problem is that the sensation of having a tube down her throat has been causing her to gag which is obviously never good for someone who’s already been throwing up.
By the time we got here this morning she was too weak to do anything but sleep. It’s now nearly 5pm and because she was so dehydrated the protein levels in her urine never made it low enough to start chemo today. They’ve decided to admit us to keep her hydrated overnight. They also put her on some new anti-nausea meds which seem to be working. In general she feels better this evening than she did this morning and of course that makes me feel better too.
I hate it that we’re so far away from home. I hate being away from my family, my community and my support system. But I love this hospital. Izzy’s team here is amazing. She has doctors and care managers working together on every detail of treatment. And they’re personable. I’ve never been to a hospital where the doctors were on a first name basis with their patients. But that’s how they do it here. Every person this week has come in asking to see a picture of her in the wedding. The doctors don’t just come in to do rounds. They stop in three to four times a day to answer questions and see her in the flesh. I can honestly say it feels like the doctors care and are taking ownership for her. Who doesn’t want that during something like this?
The rest of the week remains to be seen. Our tube feedings have been delayed because of how sick she’s gotten. If tomorrow goes better we can go back to the hotel after chemo. Otherwise we’ll stay here until we’re done on Saturday.
I can not stress enough how thankful I am for the love and support we have received. Every single day something encouraging finds it’s way to me from one of you. Something you’ve written, something you’ve mailed, something you’ve prayed. Everything that you’ve done has had impact. Your love has taken chunks out of the pain that we feel. So at the end of days like these I can only think of saying, thank you. For your part in loving us, in supporting us and in standing in the gap for us in prayer. You may not feel like it’s much, but it has impact.
izzystory 
Glad to hear Positivity coming now!!!!! Hope little Izzy gets the nausea more under control soon!!!! God bless you both
Molly, I work with your mother-in-law. Please know that you are all constantly in our thoughts and in our prayers. We loved seeing the photos of Izzy in the wedding, and it is so comforting and encouraging to know that your medical team is so compassionate. You all remain in our prayers.
Molly, I have the pleasure of working with your mother-in-law. Please know that you are constantly on our minds and in our prayers. We so enjoyed the pictures of Izzy in the wedding, and it is both comforting and encouraging to know that your medical team is so compassionate. You remain in our prayers.
We will continue to pray for wonderful and personal care for Izzy! Thankful that you are pleased with the team that is taking care of your baby girl!
I am so sorry that this first trip on your own has been so hard. I am praying that things will be brought under control and will go easier for Izzy and for you! If you would ever like some company, a shoulder to lean on, someone to just sit quietly with you, I would be happy to drive over for a few days. Our son lives over there so it would be easy for me to do. I am serious about this offer. Call me anytime!
Marcia
I look forward to hearing your posts. I’m praying for u all. Love u guys.
Oh Molly, even though you are miles away and it has been quite awhile since I’ve had contact with you please know that your Izzy and you including your husband and son have been in my thoughts and prayers. So thankful that in spite of the the day you’ve had there is something positive you are able to find! Your honesty and account of your days helps us so much in knowing how to pray and pray we will! Prayers for healing for Izzy, provision for your family and wisdom for the doctors and those in care of Izzy will continue!
We share a mutual friend who has filled me in on your situation. Just want you to know we are praying for Izzy’s healing, we pray for each of those God brings forward to care for her, and we are praying for you and the rest of your family. We are in the same town where she is getting treatment…..please do not hesitate to let me know if we can help you out in any way!
I’m so glad to hear it’s going as well as can be expected! I hold Izzy in my heart every day and pray for her and your family.
I would feel honored to be on your team and I know they feel the same way. To be able to do and accomplish what they are is why we all go into the medical profession. I know Izzy is where she needs to be and that maybe without you realizing it you are ministering to them. Often I wonder who is caring for who – me or the patient! I can only imagine how long your nights must be but I know that Christ is right by your side during those seconds, those minutes and those hours. You are so very loved Molly.
Molly, I think of you every day. Your posts take my breath away. I can’t imagine how deep you must dig for the strength that you pull up minute to minute. It’s astounding. In those moments when you are looking down at the face of your little warrior know that you are not alone. Not in the darkest hours of night or in the brightest lonely afternoons. We are all aching, but I know you and Kendrick are howling inside. We love you. We just really love you. And we are throwing every nugget of courage we can muster straight in your direction. You are strong and amazing. Go team Izzy.
Always praying for Izzy and your family Molly. Faith in numbers works wonders. Much love.
Thank you for writing and keeping us involved in this personal journey. I’m sure there are days it’s helpful to write, and other days you don’t feel like writing, but it’s so wonderful to know how we can pray specifically or what small thing you may need. Everyone feels powerless in this, but if we all strong together, we will all get through it together! We love all of you!
Katie and I continue to pray each day for Izzy and your entire family.
I don’t know you personally. But I am praying for you. I can’t even begin to understand how you feel not will I try. I will however pray for you and pray for Izzy. May God heal your precious little girl and make her whole again. May Godalso continue to give you, your husband and family strength and courage to keep fightening this horrible disease! We pray for healing!
Stacey
Everything your family is going through takes a part of our hearts too. We are all pulling for you, feeling for you, praying for you, loving you.
I pray for your family daily and the four of you come to mind very often. I wish there was something any of us could say to make things easier for Izzy, for all of you – something that would take you out of this situation. But since there are no words right now, please know that many of us care. Many of us are gripped by Izzy’s situation. Many of us are offering prayers to the Father on your behalf. And many of us believe that it will work.
It’s Tess here in Arizona. I just want you two to know that Kurt and I are with you in thought, and that we wear your bracelets and think if Izzy often. I know Kurt especially wishes he would be there with his family during this time. Stay strong and keep up the writing.
Tess