Day 58 – Celebrate

The first week of July, when we arrived at Children’s for outpatient testing, we saw a patient leave the Oncology/Transplant floor after their transplant. Staff lined the hall and sang as the the child paraded through them. We stood at the opposite end of the hallway in clinic, waiting our turn for appointments to get treatment started. It seemed as though we would never get our ‘parade.’ But today, eight months later, we did.

Over the next couple weeks we will be staying here in Cincinnati in a hotel continuing to treat the TMA and getting things started with radiation. She is still on tube feedings for twenty hours a day and IV nutrition for twelve. She has a list of ten medications that have to be given multiple times a day. The only problem with not being in the hospital is you don’t have people to do it all for you. Today was exhausting. But it was all worth it because throughout the entire day I saw her smile and say, ” I can’t believe this is really happening. It feels like a dream.”

We celebrate today because she has made it past this milestone. Thanks so much for your prayer and support along the way. We still have a long road ahead, but for now we’re just going to thank God for how far we have come.

26 thoughts on “Day 58 – Celebrate

  1. Oh my gosh, Molly! That was so great. She loves that song so much and how great that they sang that to her. I already think about her every time I hear it and now I will remember her victory walk when I hear it as well.

  2. this is the best video ever. What a wonderful way to start the day.
    I praise our Lord for this day that has come and for bringing you all through it. What a wonderful parade. Praying for God to bring you strength and healing in thte days ahead.

  3. Oh I just got goosebumps! I’m so excited and thrilled that today was your parade!!!!! It is a milestone and one to be so thankful for! And I see she has her little pink stroller!!!!! I love it!

  4. I missed seeing it by one minute, but I’ve watched the video about 5 times. It’s was such a good day. Glad I was there to see you out and give a hug. Go Izzy!!!!!

  5. AHHH!!! PRAISE GOD! I, too, am typing through my tears and thanking God for bringing you this far!! Enjoy ‘staying in a hotel’, Izzy!! Hope it’s like ‘vacation’ for you!! We love you, Izzy! We love your mom and dad & Carter… and we are so excited for this milestone for you!!!

  6. Oh my goodness, tears streaming down my face!! This is a beautiful video. I am so so so happy for Izzy. Continued prayers coming from Novi!!

  7. I am Laura Mackness Fair’s mother and want you to know that many here in London, Ontario, Canada are following Izzy’s progress and praying for her complete healing and for continued strength for you and the rest of your family. I pray for the day when these weeks and months will be but a memory. I love her name.

  8. WHOA!!! I had to see that video a few times to make sure…praising God for all His goodness and blessings. Do enjoy the time, outside the hospital. We will continue with the prayers…for total/complete healing. What perseverance y’all have. Much rejoicing with you. Praise the Lord. <3.

  9. Oh Molly, Kendrick, Carter and Izzy, we are soo soo happy for you and celebrating from afar with you! Praise God for this day! love you, Tera

  10. Yippee!!! Horray!!! Praise God!! …And the angels lined the hall too and keep celebrating this victory walk with you as well! Thrilled to celebrate with you. Happy Birthday Izzy!! Peace, joy, rest, and refreshing be yours in this new season.
    Love you much!
    Debbie K

  11. Beautiful little princess walking down that hall! Have faith in the coming days. Rylee has some many “ologists” that she will always have to see, but she is basically a normal little girl getting ready to celebrate her 9th birthday. I am only telling you this because issues will probably arise that have to be dealt with, but you have the beautiful little girl to hug. Izzy-I wish I could give you a hug, but instead I send my thoughts and prayers. You are a very special little girl.

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