We started the trial drug a few days after everything changed. After I finally understood what 'choices' I really had to make. We did a couple cycles of that and I was just in the hospital all the time. There was so much that I understood now that I just hadn't known before. I never …
Spring 2020
I am twelve now. My birthday was in March and I got a trampoline. I had wanted one for a long time but couldn't have one since my legs hurt a lot. After Covid happened and school was canceled, Carter and I started jumping on it everyday. I felt amazing. Until the day that everything …
February 2020
Our oldest cat, Eddy, died last week. He died because we put him to sleep. Eddy stopped eating or drinking much a couple months ago. Then he got real skinny and cried a lot, like it hurt when he walked. Momma said he was probably just sore from being so old. He was seventeen. We …
Fall 2019
I had such a great summer after we found out I didn't have cancer anymore. Everyone was just happy all the time and I got to do all my favorite things, like go swimming, go to the lake and have sleepovers. I had so much energy and I was thankful to not have to be …
Summer 2019
I kept doing my treatments but they seemed to get harder and harder every time. Momma said it was probably because I had been getting treatments for so long that it was just hard on my body. Everything hurt when I was in the hospital and a lot of times it was hard for me …
Spring 2019
I go to the hospital one week out of each month now and I'm getting tired of it. I just want to go to school with my friends, I want to have energy and I want people not sticking me with needles. I'm so sick of having cancer and I've been thinking a lot about …
Fall 2018
We couldn't do another MIBG right away because the machines were being worked on or something. Momma was not happy about that. Instead we did another kind of chemo we had done before. I had to be in the hospital a lot and it made me real sick but it helped my pain. I got …
Summer 2018
Since I was still a little radioactive when I came home from MIBG I had to use my own bathroom and my own sink. I wasn't able to go to school for a couple weeks either and I was sad about that because we were hatching chickens in 4th grade. Momma said since a lot …
April 2018 – Part 2
When we got back from Florida we started my new treatment right away. It was called MIBG which I thought was confusing because that was also what they called one of the scans we did for my kind of cancer. I didn't really understand what it was but the doctors said they were giving me …
April 2018
I was still in the hospital a couple days later when the pictures finally showed the cancer. It was in my bones. All of them. My legs and my back and my arms and my hips. The cancer was everywhere and it was the worst in my one hip where the pain was. They had …
izzystory 