Some days are manageable. Others aren't. We didn't go home last week as we had hoped. It's day thirteen and everyday our departure gets delayed by another setback. A fever, a virus, mucositis, C-Diff, her inability to keep down formula. Today I had multiple people tell me that Izzy just seems to be getting hit …
A Day in the Playroom
This stay has gone well for us. Izzy triumphed through chemo this round though she now has C DIFF, a bacteria infection in her GI tract. We didn't get out of here today as we had hoped but we will still have a good two weeks at home before surgery if we leave soon. We'll …
Now That the Dust Has Settled
As you may have noticed the gaps between my entries are getting wider. It's not that there isn't anything to say, it's just that sometimes I feel like my heart is a broken record. In the beginning there were so many emotions I was feeling, they were all so new and fresh. But now that …
Patient
I've tried to write this entry at least a half a dozen times but my thoughts are so non-cohesive that it always turns out as hopeless ramblings of darkness. Needless to say this eleven day hospital stay has been difficult. In my mind I had prepared to write about how the doctor's warning about this …
TRUST
I was in sixth grade the first time I played the TRUST game. I remember when we were told we had to take turns standing on top of a picnic table and falling backwards into the arms of our team members. We looked at one another in terror. The level of trust you had to …
Best Vacation Ever
There was a time in my life when vacation looked a certain way. Â It usually involved a plane, some place warm and if I was lucky, the beach. Â Last week I got a vacation that looked nothing like that and yet it was, by far, the best vacation I have ever had. It was a …
A Parked Boat
We've been in this hospital for what seems like forever. Aside from two nights at home, tomorrow will be two weeks. Her white count began to rise today and we're hopeful it will be ready for the harvest on Tuesday. Tomorrow is the surgical placement of the line for that harvest of marrow. Her platelets …
When The World Stops
When you feel the world stop, like when someone tells you your child has cancer, you can almost tangibly feel your heart instantly drop into the pit of your stomach. I think it might actually stop beating for just a moment. And then there's your lungs. Â You are suddenly more aware of the air coming …
Two Little Girls
Sunday afternoon we made it home, for lack of a better word. Â Perhaps I should just we made it back to our house. Â It isn't quite the same anymore, with medical supplies piling up, nurses stopping by, and Kendrick and I being the ones wearing a stethoscope and giving her a shot. Â We get the …
Crisis of Faith
I can't even remember what day it is anymore. Â I think today is Saturday but I wouldn't put money on it and someone told me August is here. Â It's been a long week to say the least. Â The last two days have been a whirlwind of emotion. Â It all started with visitors yesterday. Kendrick and …