Finally it feels like Fall. My favorite part has been the evenings, as the sun goes down, the sky grows a tiny bit pink and the cool air comes. It is then that I notice the changing of the leaves, notice the many that have made their way to the ground from their homes in …
Stability
I struggle with this place that we are now, this place of STABLE disease. There are moments of each day were I feel exceeding joy that Izzy is still alive. That she is in school and playing soccer and enjoying being a child. But those moments are always followed by fear of the future …
A Celebration of Unawareness
September. Summer's heat meets Fall's crisp air and school is back in full swing as if it never stopped. I sit out on my deck this chilly Sunday morning with my coffee and my headphones listening to the same old worship song on repeat over and over again. Just this week I received some photos …
The Heart of a Mother
I sat on a playground bench tonight and did the thing you're never supposed to do these days at playgrounds. I did that thing mothers are scorned for doing when they are supposed to be engaging with their children. Occasionally I would catch glimpses of other mothers looking at me. I was that mom we …
Izzy’s Story
Hospital beds are one-size-fits-all, you know. That's why you can't see her in this picture. But she is there, hidden within the white that engulfs her. I knew something was wrong when I took her to the Emergency Room Sunday. A sharp pain, I told them. It's nothing, they said. I knew it still when …
izzystory 